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My daughter has Marfan's Syndrome

What is marfans syndrome

Marfans syndrome is a connective tissue disorder. Disorders of connective tissue affect the skeletal system, cardiovascular system, eyes, and skin. Connective tissue provides substance and support to tendons, ligaments, blood vessel walls, cartilage, heart valves and many other structures. In the Marfan syndrome, the chemical makeup of the connective tissue isn't normal. As a result, many of these structures aren't as stiff as they should be. picture of my daughter when she was a toddler

Features of Those with Marfan's Syndrome

Tall stature - affected people are usually, but not always, taller than other people in their family

Scoliosis

Flat feet

what it has been like in our lives

Living with marfans syndrome Read more at www.squidoo.com

 

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